Clock changes

Blurry thoughts from another 4am wake up. Changed the clocks again, didn’t they?

As much a I am enjoying my evenings back with pre-8pm sleep (haven’t seen that in a few years), I am not loving second 4am wake up in a row. Then the other “night” discussing where the universe is at 5am. You know because the moon is still up and so we have to look at it and discuss it. At least I could do that with my eyes closed.

It’s not that my struggle is unique. We frequently get 8 hours of sleep straight from little man which is more than other ASD kids I know. However it is unique in effecting me in this household. Little A is wide awake now. His behaviour may suffer when he sleeps less but he doesn’t. He just feels awake. His dad goes back to sleep like a dream although will be up in a few hours for work. Just me who doesn’t like waking early and who doesn’t get to go back to sleep.

Maybe if I change my clock to the old time? Been woken before 5am might feel slightly better.

Here’s a buzzfeed post so you can yawn in solidarity YAWN


He’ll sleep well tonight

bouncingHands up who has heard this this week? My guess is that anyone whose taken their child to a party this weekend will have heard a variation on the theme “He’s worn himself out for you at least”.

Some kindly relative will say this as you watch twenty five-year-olds bounce up and down 500 times, no doubt throwing themselves into the path of a few other little bodies. Everyone watches on with a sort of wistful desire for that amount of energy and ability to rebound. You sip on Nescafe, just trying to get through the joyous noise without a headache and a little part of you knows they should nap after such exertions. But, if like me, you have a child with sensory processing issues you can see it will never be as easy as that.

Sure, all parents see their children get overtired, high on sugar (although apparently that’s scientifically impossible, hmm) or generally so “hyped” with excitement they get a poor night’s sleep. When they do go off to sleep they will be zonked out however there will be a knock on effect for most children who don’t have problems processing their day. I have even heard of children having lie-ins after exciting days (what is this lie-in you speak of?) However there are a unique and complicated set of circumstances that means that my child and other children with sensory processing issues may not sleep any better in fact will probably sleep worse after partying too hard.

– During the party he is in sensory seeker heaven. If you don’t really know where your body is in space throwing yourself down on soft play surfaces is very exciting and comforting. The technical explanation is he is getting lots of sensory input to his under-responsive proprioception system.   This amazing feeling makes him very alert but he can gorge on this meaning he needs to calm down his body. We have lots of methods to calm down now such as firm pressure with the peanut ball but it’s still can leave his little body far too alert to stop moving and go to sleep.

– Speaking of gorging, Little A enjoys stuffing his mouth and eating lots. Loads of kids overeat at parties but  whether it’s the sugar, lack of veggies or bowel sensitivity the results of eating too much can keep him awake.

– Emotional regulation is something I am just learning more about. If you are slow to process sensory input, processing what a feeling means is made far more complex. If you are not careful emotions around the excitement at birthday routines, anxiety about newness in an environment, anticipation for the good bits like cake can all go to over-whelming very quickly. A happy little boy can very soon switch.

– There is a lot to process in any setting (love this on NAS website sensory overload) and one of the main things I find that helps is telling the story of our day.

So no, he won’t sleep that well tonight but with a little work we will all be very happy that he has been able to join in the birthday fun.

Buried Treasure 

Simple things are sometimes the best activities. 

I took 8 coins from the play till and buried them in the playbox of sand. 

Now we just play pirates and dig up the treasure. This was inspired by a Bubble Guppies episode that he enjoyed about being pirates. I love to encourage anything that is pretend play even if us saying “Arrr”!

Next time I might wrap up some card circles in foil, it was really hard to find all eight and Mummy had to take it quite seriously to get them all found. 

What it is like to parent a child who can never be left alone

I came home from town the other day, totally exhausted. We had followed his lead and done just a few chores. It was a very simple outing but I was on edge the whole time. The adrenal fatigue left me needing to lie down but there’s little chance of that unless I convince he needs to as well. Being in constant hyper vigilance depletes you but that is often the reality. Recent minor infractions while Mum tried to go to the bathroom

1. Wee thrown out of potty on the floor

2. Ripped book

3. Toy chucked out the window

4. Mega sketch toy stepped on and broken

This excellent blog explains what it can be like;

Source: What it is like to parent a child who can never be left alone

Even fun can be tough

Some fun has to be cut short. I had used my Odeon points to buy tickets to Despicable Me 3. He was so excited but being in the cinema was just too overwhelming for him. 

Afterwards he could tell me It was “too dark” and he “didn’t like the screen”. I imagine it’s too bright. I struggled through lighting up his seat with my phone torch, letting him move back etc. Ultimately I called time. He had laughed for a short time at the car chase that is near the beginning and we had managed maybe 30 minutes. He’d shouted through a lot of that though. 

Not only did I take a very distressed little boy home, I also had to deal with various difficult behaviours on the way home. In the cafe he threw some wooden stirrers on the floor. Despite having him on reins, he can go on a rampage very quickly. 

I know well by now these little acts of rebellion are part of his need to reassert his control over his environment. His Demand Avoidance traits are often particularly on display when he has been anxious. 

I had to stop him today from ringing every doorbell we pass. Direct instructions are a red rag to a bull at these times so instead I tried to distract and give him things to look at on the road. Ironically the thing that worked today was he spotted the “Minions bus” (its advertising Despicable Me 3)
We are waiting to hear about the Autism screenings as we want to see Cars 3 and I’d like to see the end of the film!  


Source: SENDBingo©

 You’ve got to see this post from my kid loves broccoli. It’s all about filling out your bingo card with all those things people say to you, experts or otherwise when you’re a parent of a child with SEN. 

So on point. I bloody love it! I got Bingo already this week! You?