- 3 fidget spinners
- 2 light up balls
- A chew toy
- A helicopter (spin)
- A spinning puzzle
Sums up our life really!
Simple things are sometimes the best activities.
I took 8 coins from the play till and buried them in the playbox of sand.
Now we just play pirates and dig up the treasure. This was inspired by a Bubble Guppies episode that he enjoyed about being pirates. I love to encourage anything that is pretend play even if us saying “Arrr”!
I came home from town the other day, totally exhausted. We had followed his lead and done just a few chores. It was a very simple outing but I was on edge the whole time. The adrenal fatigue left me needing to lie down but there’s little chance of that unless I convince he needs to as well. Being in constant hyper vigilance depletes you but that is often the reality. Recent minor infractions while Mum tried to go to the bathroom
1. Wee thrown out of potty on the floor
2. Ripped book
3. Toy chucked out the window
4. Mega sketch toy stepped on and broken
This excellent blog explains what it can be like;
Some fun has to be cut short. I had used my Odeon points to buy tickets to Despicable Me 3. He was so excited but being in the cinema was just too overwhelming for him.
Afterwards he could tell me It was “too dark” and he “didn’t like the screen”. I imagine it’s too bright. I struggled through lighting up his seat with my phone torch, letting him move back etc. Ultimately I called time. He had laughed for a short time at the car chase that is near the beginning and we had managed maybe 30 minutes. He’d shouted through a lot of that though.
Not only did I take a very distressed little boy home, I also had to deal with various difficult behaviours on the way home. In the cafe he threw some wooden stirrers on the floor. Despite having him on reins, he can go on a rampage very quickly.
I know well by now these little acts of rebellion are part of his need to reassert his control over his environment. His Demand Avoidance traits are often particularly on display when he has been anxious.
I had to stop him today from ringing every doorbell we pass. Direct instructions are a red rag to a bull at these times so instead I tried to distract and give him things to look at on the road. Ironically the thing that worked today was he spotted the “Minions bus” (its advertising Despicable Me 3)
We are waiting to hear about the Autism screenings as we want to see Cars 3 and I’d like to see the end of the film!
You’ve got to see this post from my kid loves broccoli. It’s all about filling out your bingo card with all those things people say to you, experts or otherwise when you’re a parent of a child with SEN.
So on point. I bloody love it! I got Bingo already this week! You?
I was so proud of Little A’s Dad the other day. He took him to a birthday party but brought him home before disaster struck.
I was worried because I couldn’t come too and recently we’ve both been there. We know the signs that things are going south currently that means overeating (sensory input helps him but also he’s a Cookie Monster). He will also tip drinks over (fun game but also enjoys the reaction) and may start pushing others (over excitement, rough housing gives him lots of sensory input). In the end after he’d tipped his second drink on the floor Dad brought him home. We had prepared the child’s mum that we may leave early and I am so happy that he got to be part of it. Really he only missed the cake and had managed most of the party!
*Disclaimer: chose Octonauts at random, don’t particularly have a feeling one way or another about this show.
My little man’s top five interests at the moment are:
1. Level crossings
2. Traffic Lights
4. Washing machines and tumble dryers
5. Light switches
I would be hard pressed to rank these in order because he is becoming a little more flexible and his interest flits between these subjects. He doesn’t just like them, these are the constants of his waking moments. We spend a lot of time watching YouTube videos about these subjects. Guilt-wreaking hours of YouTube time which makes me feel terrible until I motivate him away to use the building blocks and realise we have to talk about these same videos. We may as well watch them.
He uses delayed echolalia a repetition that is common amongst people on the autistic spectrum. I love this video by Autistic Genius that explains it. For Little A it means he has the whole script of these lengthy videos down pat. We have seen a massive progression since May where he is using these scripts to engage with me more and constantly wants to “tell the story” of the video. My job as his parent is to keep an eye on what he is watching and not look deathly bored when he wants to talk about it.
When I tell other people that my son “is a fan of fans” or “loves washing machines” they generally think it’s cute but also laugh nervously. It either seems precocious when he uses technical language (condenser dryers) or it seems like he must know a lot when sometimes he is only repeating. I mean it is different. I am dreading the Summer holidays as I can see it descending into hours of YouTube a day but I think special interests have their place. While I am working hard making the correct level crossing dinging sounds, I will just have to remind myself it’s no duller than acting out Paw Patrol.
Has your child got an interest that you’ve got a bit bored of?